Tamika Felder
Survivor and advocate"I was surrounded by people who were very supportive and wonderful. But there were also a few people who said cruel things because my cancer was linked to a sexually transmitted virus," she recalls. "That was painful, and those people either ended up being cut out of my life or their place in my life was minimal."
Tamika had to have her cervix and uterus removed, and had chemotherapy and radiation to kill all the cancer cells. To this day, the most difficult part of the experience was realizing she'd never be able to give birth to a child. But financial strain was also an issue, due to all the medical expenses. Before cancer, she had been making a name for herself in the broadcasting industry, but after her diagnosis she was unable to pay her bills. With her career on hold, issues with money, and her social outlets affected, Tamika gave up on life.
"It's so easy to give up," she says. "I remember kissing my mom and my best friend goodbye in the hospital days after my surgery. The pain was unbearable and I just wanted it to be over with. But they wouldn't let me give up. They provided the strength I needed to continue fighting. And eventually, I realized cancer didn't have to be a death sentence."
Tamika made the decision to face the disease head on, and she fought for her life as hard as she could. If she lost her life, she decided, it wouldn't be because she gave up. Today, 10 years after her surgery and treatment, Tamika is once again working in broadcasting, as a television reporter and producer in Washington, D.C.
"I had an amazing support network and knew that I was in good hands with my health care," she says. "So my coping strategies became research and understanding for my disease. The more I learned, the more I was determined to beat it."
Staci Wright
Helping kids regain their self imageThe treatment was 10 months of chemotherapy, along with 5 weeks of radiation. "For me, the hardest part of the cancer battle was that my pain was hurting my whole family," she recalls. "It put so much stress on my parents and older brother. Luckily my sister was too young to really realize what was going on."
During it all, she tried to stay positive and upbeat, doing her best to live life as a normal kid. The support of her family and friends helped her get through many painful times during the year. But even so, there were days when she felt overwhelmed.
"Sometimes it felt like I was all by myself in this battle," she says. "I realized others couldn't fathom what I was going through, and so there were times when I just wanted to be left alone."
Hair loss from chemotherapy isn't easy for any patient. But for a teenage girl, it can be devastating. Staci felt sad and depressed with losing her hair and didn't want to go to school. "I had a really hard time with my hair loss. But there was nothing I could do about it except move on to more important things, like surviving," she says. Unfortunately Katie's radiation killed all the hair cells on a patch of skin on the back of her head, causing her hair loss to be permanent.
Fortunately her mother, Debbie, learned of a hair system that stays in place, made of real hair attached to material that looks like a scalp. Staci loved her new hair but was concerned about the other kids she met at the children's hospital who were still dealing with baldness. "It's tough for people my age to lose their hair," she says. "They lose their self-esteem with it."
Life is something
that can’t be
taken for granted.
that can’t be
taken for granted.
That's when Staci and Debbie decided to do something to help these kids. They established the Angel Hair Foundation
Staci is now doing well, playing soccer, hanging out with her friends, and attending the University of Oregon. She believes she'll always have insecurities about her permanent hair loss but trusts that she'll know how to deal with them when they arise. She's excited about what life has to bring to her and plans to become a dietician. More important, she knows that true friends will love her no matter what her hair looks like.
"To me, life is something that can't be taken for granted. I can't be that little shy girl that doesn't push the limit every once in a while," she says. "I often think about how cancer affected my life, about how I developed as a person through this experience. Cancer made me realize what is important in life and made me the more mature person I am today. Carpé diem!"
Ben Moon
The picture of balance"I was only 29, and a lot of people my age don't get scoped," he says. "The fact that I got sent for a colonoscopy saved my life."
Shortly afterwards, he was diagnosed with colorectal cancer. After undergoing radiation all summer and then chemotherapy, Ben had surgery to remove his rectum, leaving him with a colostomy. Eight more rounds of chemotherapy left him exhausted and feeling toxic.
"It was pretty hard emotionally to deal with that kind of a change to my body, especially in my late 20s," he says.
It was difficult for him to deal with the colostomy at first, but Ben researched the procedure and realized he could irrigate daily, having far greater control. He started rock climbing again just weeks after surgery, eager to get outdoors and test his new limits.
"The thing that helped me the most was focusing on one day at a time and not looking too far ahead," he says. "I never let a feeling of defeat creep in; I tried my best to stay positive. Seeing the brave smiles of those who were much older and physically weaker than me in the infusion room was a huge boost."
Ben was lucky to have wonderful friends and family who gave him ongoing support. They encouraged him to keep up his active lifestyle, helped with meals, sent cards and notes, and even held a silent auction to raise money for his medical bills. "They wouldn't let me lie around and feel sorry for myself," he says.
Cancer taught me how to thrive even through the tougher times of life.
His photography clients were very understanding, too, and made sure he had work to do. With everyone's help, Ben made it through his treatments and got "back up on the wall" with a chemo pump line dangling and a new lease on life.
Now age 36, Ben is working with a company that makes ostomy supplies, helping them improve their products so that people who have the procedure and who are young and active can feel confident with their condition. "I'm very aware of how I treat my body," he says. "I try to practice yoga, climb, surf, and bike often. So I know how important it is to have a sense of control, trusting that you can live your life the way you want to."
In a world where most people aren't comfortable discussing colostomies and the challenges that come with them, Ben encourages questions and welcomes the opportunity to help others through his Web site
Surviving cancer has brought Ben closer to his friends and family. He believes this greater connection caused a shift in his photography, too, helping him to capture human emotion more clearly in his subjects. "I feel more focused and driven to improve and grow as an artist," he says. "Cancer helped me appreciate those I love in my life even more, and taught me how to thrive even through the tougher times of life."
Matthew Zachary
Composing a support network for young adultsMatt had brain surgery and extensive radiation but refused chemotherapy because he wanted to be able to continue to play the piano. One of the drugs he was offered would have caused peripheral neuropathy, a side effect he wasn’t willing to endure for the rest of his life. Music was his anchor, and he made every effort to sit down at the piano and play, even if only just for minutes a day.
"In spite of losing the ability to use my left hand, music was a grounding force in a sea of chaos," he says. "It was the only thing I had control over, and it made me happy."
Cancer gave me the confidence to take risks,
and the belief that I could accomplish anything.
and the belief that I could accomplish anything.
But, once he finished treatment, he felt jaded and angry. There were no support groups or internet resources for people like him, cancer survivors in their 20s. And at the time, the word survivorshipdidn't really exist within the oncology community. After surgery and treatments, the doctors gave him little guidance or planning for what to do next in life.
"I know all about that isolation and fear. The feeling of, 'What am I going to do for the rest of my life?'" he says. "I had lots of love and support from my friends and family, but I was desperate for peer support from other young adult patients and survivors who could relate to exactly what I was going through."
As timing would have it, after making a career in advertising, Matt recorded a CD of his own compositions to help him heal and put closure to his cancer. Through a series of events, the project evolved into his becoming an advocate and spokesman for young adults with cancer. Now his organization, the I’m Too Young For This! Cancer Foundation
"Cancer made me a better person," he explains, "in that it gave me permission to live life to the fullest, the confidence to take risks, and the belief that I could accomplish anything."
Katie Strumpf
Sharing her stories"I followed my parents' lead, in that I tried to be positive and understand my treatment," she says. "One of my coping strategies was to remind myself that, although cancer was forcing me to grow up a lot faster than I wanted to, going through the treatment would give me the opportunity to grow up and at some point, just get to be a kid."
Members of Katie's family came from near and far to support her. They brought her favorite foods and games to help her feel normal.
Having cancer made me appreciate life…I’m a stronger and better person.
The hardest part was missing a lot of school, she recalls, and not getting the opportunity to feel like a regular kid. Spending so much time in the hospital took a toll on her, too. And getting sick from chemotherapy was exhausting, especially at such a young age.
During treatment, Katie told her parents that someday she would write a book for children with cancer. Sure enough, after graduating from college, she wrote I Never Signed Up For This! An Upfront Guide to Dealing with Cancer at a Young Age,an easy-to-read book for kids with cancer.
Today, Katie's life is still very much focused on cancer issues, particularly the fight against pediatric cancer. She gives public readings of her book and for a while worked at a nonprofit organization that helps seriously ill children and their families. Unfortunately, she lost her husband, Adam, to a brain tumor last summer, so she is sharing her thoughts about surviving as a young widow on her blog,Sleepless in the South
On the last page of her first book, Katie summed up her current view of life in this way:
I know you probably think I am crazy, but having cancer made me fully appreciate life. I go after what I want in life and believe I am a stronger and better person. Of course there are times when my life is uncertain and I am unsure of my path. When I'm hesitant to take that next step, I look over my shoulder and she's always there. That young bald girl with cancer dares me to give up, to not take that next step . So I put on some red lipstick, toss my hair over my shoulder, and take that next step. I owe it to myself, and the cancer survivor that I am."
Commentary:
These stories could touch someones heart, because they are really sad in a sense. The age that some of the survivors first find out could really hurt the family or anyone else that has to go through it. I can not say that I know of the pain that they may have gone through, but I hope that they are continuing to